Desmoid-Type Fibromatosis FAQ
What causes Fibromatosis?
The exact cause is unknown, but genetic mutations, such as those affecting the CTNNB1 gene, may contribute to its development.
Is Fibromatosis cancerous?
No, it's a benign condition, but locally aggressive and may recur after treatment.
Where does Fibromatosis typically occur?
Common sites include abdominal wall, extremities, and intra-abdominal regions.
What are treatment options for Fibromatosis?
Surgery, radiation therapy, or medications like non-steroidal anti-inflammatory drugs (NSAIDs).
Can Fibromatosis be cured?
Complete surgical removal can be curative, but recurrence rates vary.
How is Fibromatosis diagnosed?
Through imaging tests (e.g., MRI, CT) and biopsy for histopathological examination.
Is Fibromatosis painful?
Some patients experience pain due to tumor growth and compression on nerves.
Does Fibromatosis affect children?
It can occur at any age, but is more common in young to middle-aged adults.
Can Fibromatosis spread to other parts of the body?
No, it's locally invasive but doesn't metastasize like cancer.
What happens if Fibromatosis is left untreated?
Tumors may grow, leading to complications like organ damage or functional impairment.
Are there support groups for Fibromatosis patients in Malaysia?
Yes, organizations like the Malaysian Rare Diseases Association offer support.
How often do Fibromatosis tumors recur?
Recurrence rates range from 20-70%, depending on treatment and tumor location.
Can lifestyle changes help manage Fibromatosis?
Maintaining a healthy weight may reduce abdominal wall tumor risk.
What is the prognosis for Fibromatosis patients?
Generally good with timely treatment, though recurrence requires ongoing monitoring.
Are there clinical trials for Fibromatosis treatments in Malaysia?
Check with local research institutions or the Malaysian Ministry of Health for current trials.
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